The Association
AISS - Italian Shwachman Syndrome Association is a non-profit association, with no party affiliation or political links of any sort, created by a
small group of parents whose children have SDS.
Working to raise awareness of SDS, AISS is democratically organised and refuses any form of discrimination related to language, religion, nationality,
ideology or sex.
AISS works in close collaboration with a Scientific Advisory Committee, recognising the importance of joint efforts by parents and doctors to ensure progress in knowledge and treatment of the disease.